It's been quite busy since the summer. It has been really hard to just stop and take a breath. School has started and I am in the thick of working the foundation. Things have been amazing though. Life has just been lining up and all in God's timing. I can honestly say that I have never quite felt so at peace and enjoy every minute of work I do to help further research and awareness. It is so true the old saying goes "You never work a day in your life, if you enjoy the work you do". That is exactly how I feel. I have an amazing group of supportive people surrounding me, encouraging me and walking every step of the way with me. I couldn't do this without them, nor would I want to. I am truly blessed by the people who have entered my life. I don't think I ever knew what it meant to be fulfilled and all just by helping those who can't help themselves. People are my passion! Yes, there are some people who are just plain jerks, but I guess life hasn't hit them in the face yet. Typically, when life hits you real hard, you are given a choice. Take notice and change to make it better or be a victim of your own circumstances.
Ok, I still get whacked around by life sometimes and they aren't so great, kinda like what happened a couple days ago. Here's a quick back story on our Beckett. We have had issues with him getting sick with strep numerous times. We are trying to balance out his medication and make sure his seizures are controlled. His hyperactivity was needing to be brought down a couple of notches. So the medication balancing act has been on going for the last few months.
Well.. We tried something different .. Umm.. Big mistake! I thought well.. Beckett has been doing ok so far in public places no meltdowns in quite sometime..to no avail!! I take him with his sister to watch the last part of her daddies football game. That lasted all but 5 minutes. Beckett decides he wants to go up the bleachers. Welp, this momma thought oh God!! I'm in trouble now! Sure nuff that boy in front of God and everyone pulled hair, screamed to to top of his lungs like I was killing him. Of course half the Stadium was filled with my parents and my students. You could hear a pin drop in the middle of each of his breaths to scream again. I was mortified for about one second and wanted to cry. But I didn't.. But our police officer who is on our campus came to us and calmly helped me with my child. He walked us to the car as he was screaming. He looked at me and said "it's ok momma" I looked at him and said this is why I will never stop looking to help my child lead a normal life. He said.. "I know.." And he smiled through all of the screaming. Then I got in my car and cried..I cried all the way home. This meltdown was nothing like I had seen in a while. I finally got his medicine down him and bathed for bed. Through all the screaming and crying, he finally laid down in my bed and fell asleep next to me. I was alone at home and I had left Pyper with her dad. The silence was golden. I very gently scooped him up, all 67 pounds of him.. (that's why I workout, that kids is heavy) and carried him upstairs to his bed. When I came back down stairs I sat down and the tears just wouldn't stop. I couldn't quit crying. It felt good though just to weep. I didn't feel sorry for myself. I was just tired and scared. Scared of what the future has for him and us. A flood of anxiety came over me, but as fast as it came it left. It was the hope that we (our SYNGAP families) are building something that will change peoples lives. It is something I can't stop just because I am tired, so I thought. I guess I had to give myself permission to rest and just not think about anything. I had to mentally and emotionally push a reset button. I think that time to let go was what I needed to put things in perspective and remind me of why I am doing what I am doing. It's to help better other lives, not just my own. That's hard being the naturally selfish people that we are. Sometimes a good smack in the head keeps it level. So here's to life and to one more day. Bless those who bless others, that is what life is about.
