My Special Boy

On a journey with my child that has a rare neurological autosomal genetic disorder called SYNGAP.

Thursday, February 13, 2014

My Special Boy: JEANS FOR GENES!!! Wear jeans on Feb 28 to show yo...

My Special Boy: JEANS FOR GENES!!! Wear jeans on Feb 28 to show yo...: Share for Rare! Jeans for Genes....Wear jeans Feb 28 to show you care! I love my son Beckett who has a rare genetic neurological disorder ...

Posted by My special boy at 8:23 PM No comments:

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JEANS FOR GENES!!! Wear jeans on Feb 28 to show your support for RARE GENES DAY!

Share for Rare! Jeans for Genes....Wear jeans Feb 28 to show you care! I love my son Beckett who has a rare genetic neurological disorder called SYNGAP1..

Posted by My special boy at 8:22 PM No comments:

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Labels: absent seizures, Global Developmental Delay, Global Genes Project, Speech Theapry, SYNGAP1, Texas Childrens Hospital

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Popular Posts

I Can Change The World!

It's been quite a while since I have posted an update on Beckett. Since the start of the new year we have been full speed ahead. Becke...
What a Crazy Life!

It's been quite busy since the summer. It has been really hard to just stop and take a breath. School has started and I am in the th...
Just Me

Have you ever just wondered how you were going to live through the day, hour, minute or even second? I am sure that we at some point in ti...
RESULTS ARE IN!!! SYNGAP-1 gene

I am sad and glad at the same time. Today we found out that my son Beckett has been diagnosed with a very rare autosomal dominant disorder...
As Life Changes

Many things in my life have changed since quitting my job teaching of 23 years. I really don't know how to explain what I am going thr...
And We're Off

It has been a crazy two months. The foundation has taken off and we are working on development, awareness and a patient registry program. ...
A Different Perspective

Beckett and Daddy decorating Easter Eggs Easter 2014 A new special mom friend shared this with me a couple of nights ago. A poem writt...
My Special Boy: JEANS FOR GENES!!! Wear jeans on Feb 28 to show yo...

My Special Boy: JEANS FOR GENES!!! Wear jeans on Feb 28 to show yo... : Share for Rare! Jeans for Genes....Wear jeans Feb 28 to show you car...
My Special Boy: I Can Change The World!

My Special Boy: I Can Change The World! : It's been quite a while since I have posted an update on Beckett. Since the start of the new y...
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