It has been a crazy two months. The foundation has taken off and we are working on development, awareness and a patient registry program. We have also started developing our website www.bridgesyngap.org. The response has been wonderful. On top of the foundations progress, Beckett has been making some of his own.
We have since raised Beckett's seizure medication (Lamictal) and when he is not sick, progress is quite faster than expected. His words are becoming more and his articulation has been where you can make out what his needs are. It helps that he points to what he wants. We are still having our moments of the frustrating melt downs and the constant running around like a motor won't turn off. But it seems to cycle every couple of weeks and when we up his dose of medicine he levels out and acts himself. Since Beckett was a baby he has been sick about every 3 - 5 weeks and on antibiotics and it seems like all the time. We have had his adenoids and tonsils removed, but his frequency of strep infections has been countless. We are adding another specialist to our list in April. We are taking him to see an immunologist to see why he is sick all the time and why he is so prone to strep infections. My concern is that the frequency of antibiotics he takes are beginning to show their ineffectiveness of fighting strep and looks to be antibiotic resistant.
We wanted to share with you a video of Beckett and his twin sister riding their first carnival ride together for the very first time. I was so excited that they were able to share a moment together, with no adaptations, no restrictions, no worry and the excitement of being a 6 year old kid. I was so proud of both of them hanging on for dear life as they spun around. Well, He let go a couple of times which scared the poo out of me, but it ended up being a great day for everyone:)
We have since raised Beckett's seizure medication (Lamictal) and when he is not sick, progress is quite faster than expected. His words are becoming more and his articulation has been where you can make out what his needs are. It helps that he points to what he wants. We are still having our moments of the frustrating melt downs and the constant running around like a motor won't turn off. But it seems to cycle every couple of weeks and when we up his dose of medicine he levels out and acts himself. Since Beckett was a baby he has been sick about every 3 - 5 weeks and on antibiotics and it seems like all the time. We have had his adenoids and tonsils removed, but his frequency of strep infections has been countless. We are adding another specialist to our list in April. We are taking him to see an immunologist to see why he is sick all the time and why he is so prone to strep infections. My concern is that the frequency of antibiotics he takes are beginning to show their ineffectiveness of fighting strep and looks to be antibiotic resistant.
